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Both doctors and everything I read starts talking about COPD (Chronic Obstructive Pulmonary Disease) by saying it is different for everyone who has it. So I'm trying to mark and track what it's like for me so that I can correctly portray my experience do the doctors (to get the best relief) and so that possibly I can better set my own expectations.

Bad days seem to have two components. On is a severe shortness of breath = sometimes even sitting and doing nothing. Walking very short distances - like 60 feet - leaves me panting. But, in addition to the lack of breath, I just feel ugh. I've been trying to figure out how to accurately describe it and so far haven't figured it out. It's kind of like flu achy without the aches. Not much of an appetite. Not really nauseous but not not nauseous either. Just generally crappy and cruddy feeling.

I started feeling that way on Friday afternoon. Crappy and cruddy and short of breath. It lasted through Saturday. I managed to do stuff - swim, haircut, etc but I also rested more than usual and even took a rare nap. I met [livejournal.com profile] machupicchu for dinner and a play last night. I could not breathe for shit. It was hard to even talk.

But, in the middle of the play, the crap and crud left. It was so weird. But, by the play's end, I felt really so much better. I still could not breathe for shit but otherwise, I felt really good.

This morning the good continues. I am going to walk to the bus tunnel (about 2.5 blocks) and take the bus downtown. Another 2.5 blocks to the movie theater. I haven't tested, but I'll bet it will be easier than last night. I'll bet you my breathing will be better. But, even if it's not, being crudless is glorious. Whew.

---

The play was the musical, Spring Awakenings. I had heard (and enjoyed) the music from when the play first hit Broadway years ago. The music is not the sort from which you can divine the plot and/or details of the story. So I was pretty clueless going in. I know it was a huge hit and people I admire just loved it. An it won one or more Tony awards.

It was interesting. I'm not quite sure I enjoyed it. But it was interesting. And I'm very glad I saw it. Turns out I had misunderstood several of the musical clues. That was a bit disconcerting. But, I was knocked out by the quality of the performances. It was a totally local production and wow. The singing and music was stellar. Very interesting.

Today's movie starts at 11. Available brunch options are not that attractive so I think I'll make my own breakfast here before I head out.

My four hour reboot schedule includes reboots at 8, 12, 4, 8 12 and 4. It seems that I am hitting 'save' or 'refresh' nearly every time the reboot reboots. Timing. I need a chirp or something just before the reboots to remind me so that I don't loose shit.

(no subject)

Date: 2012-01-15 04:32 pm (UTC)
From: [identity profile] zyzyly.livejournal.com
It seems a little strange that it would clear up like that, in the middle of the play, but it's good that it did, so you could enjoy the play.

(no subject)

Date: 2012-01-15 05:33 pm (UTC)
From: [identity profile] princessgeek.livejournal.com
My dad does oxygen a few times a day and that seems to help him. Have they talked about that yet?

(no subject)

Date: 2012-01-15 07:33 pm (UTC)
From: [identity profile] johncomic.livejournal.com
Your description of COPD is much like my description of fibromyalgia: yucky but hard to pin down exactly how. And FM is also “different for everybody”, so I hear ya...

(no subject)

Date: 2012-01-16 01:54 am (UTC)
howeird: (Default)
From: [personal profile] howeird
COPD is anything which seriously interferes with lung functions, from bronchitis to lung cancer. I would not consider it a useful diagnosis. Tracking your symptoms is a great idea, and might even help the docs narrow it down to one or two of the 12,684 conditions which COPD includes.


Okay, so I cheated and read the Seattle Times review of Spring Awakening, and it sounded like I might have enjoyed the performance but not the play. Small world, I used to date the woman who wrote the review, back when she was working for Theatre Bay Area.

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Susan Dennis

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